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Raising money in memory of Amelia Saunders – via Respectful Insolence

Amelia and her family

Amelia and her family

Please read this blog post:

Let’s Make Dr Burzynski Do Something Good For Cancer Patients For a Change

And then visit this page to donate to a worthwhile cause for the fight against childhood cancers…

http://www.crowdrise.com/fightchildhoodcancer/

Thank you :o)

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The Tragedy of Amelia Saunders – Update 6th January 2012

Amelia and her family

Amelia and her family

Following my post the other day regarding little Amelia Saunders and the dreaded Burzynski, I was greatly saddened to read today that she passed away peacefully this morning.

Rest in peace, Amelia.

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Flooding in Purley-on-Thames (update – 6th January 2013)

Jack and I went with Nana for a walk down to Mapledurham Lock this afternoon and I took some photos of the receding flood waters.  We think the water level must have dropped about 2-3 feet since the previous pictures I posted.

I strongly believe that the swans saw a child and thought we were a sure thing for bread!

I strongly believe that the swans saw a child and thought we were a sure thing for bread!

Investigative swan!

Investigative swan!

Gulls swimming in the fields...

Gulls swimming in the fields…

Mapledurham Lock

Mapledurham Lock

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The weir at Mapledurham Lock – spot the crazy canoeists??

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Canoeists on the weir…

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The water depth measured 12ft…

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The weir and canoeists

The lady at the lock cafe must have thought we were insane, as JackJack has an ice lolly (lemonade flavour) – brrrrrr!

 

 

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Philosophy on life

I found this on a friend’s FaceBook page and thought it deserved a share…

A professor stood before his philosophy class and had some items in front of him. When the class began, he wordlessly picked up a very large and empty jar and proceeded to fill it with golf balls. He then asked the students if the jar was full. They agreed that it was.

The professor then picked up a box of pebbles and poured them into the jar. He shook the jar lightly. The pebbles rolled into the open areas between the golf balls. He then asked the students again if the jar was full. They agreed it was.

The professor next picked up a box of sand and poured it into the jar. Of course, the sand filled up everything else. He asked once more if the jar was full. The students responded with a unanimous yes...
The professor then produced a bottle of beer from under the table and poured the entire contents into the jar effectively filling the empty space between the sand. The students laughed.

Now, said the professor as the laughter subsided, I want you to recognize that this jar represents your life. The golf balls are the important things – family, children, your health, your friends and your favourite passions and if everything else was lost and only they remained, your life would still be full. The pebbles are the other things that matter like your job, your house and your car. The sand is everything else – the small stuff.

If you put the sand into the jar first, he continued, there is no room for the pebbles or the golf balls. The same goes for life.

If you spend all your time and energy on the small stuff you will never have room for the things that are important to you.

Pay attention to the things that are critical to your happiness. Take care of the golf balls first – the things that really matter. Set your priorities. The rest is just sand.

One of the students raised his hand and inquired what the beer represented. The professor smiled and said, I’m so glad you asked. The beer just shows you that no matter how full your life may seem, there’s always room for beer.

Words of wisdom for us all!

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“It’ll come out in the wash…”

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Here is a small collection of random items that I have recently washed in error (ie they were in someone’s pocket…

  • a trolley coin (me!)
  • a marble
  • a drum key (David?)
  • a small hippo
  • a neatly folded kettle chips packet (this one went through the drier as well…)
  • nerf gun bullets (sigh)
  • a stone
  • a tape measure
  • a pink rubber
  • a GoGo
  • a £5 note (now mine, even if it wasn’t before….)
  • and the piece de resistance – Leo’s iPod (not pictured)…which I (huge sigh) managed to save by tying it into a bag with dry rice – thank you, internet!!!

So…what’s the strangest thing you’ve ever washed….?

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…more flooding in Berkshire (Pangbourne/Goring this time)…

Thanks to my mum and stepdad for more pictures of the flooded river Thames.  This time Pangbourne and Goring, although I am unable to distinguish, I have been reliably informed which is which!

Look at the useful bench in the middle of the flood – bet the ducks love it!

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From the Bridge at Pangbourne…uses for that bench on a postcard, please…?

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The Thames at Goring and Streatley

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Sometimes I just see beauty…

A few weeks ago, it was absolutely freezing here in the UK.  It’s now so mild that I think the flora and fauna are confused.  I took this picture near the kids’ school…

The beauty of a winter's morning

The beauty of a winter’s morning

That same morning, my car had such thick frost on it that it looked like a crown!  The kids couldn’t believe that it wasn’t snow…

Jack Frost was at work on my car!

Jack Frost was at work on my car!

I know my mother would curse me for this, but I am actually hoping for a nice thick blanket of snow…just for a couple of days, so that we can get the sledge out and maybe build a snowman.

The kids sledging on the driveway...

The kids sledging on the driveway…

SNOWMAN!

SNOWMAN!

I love being safe at home with the snow coming down thick and fast…one time that it did this, me and Dave walked the dogs up to the off licence in the village and bought a bottle of bubbly to celebrate the snow (winter 2010/2011).

...and this was *before* he started drinking...

…and this was *before* he started drinking…

That same winter, a couple of days after Archie started school, it was snowed shut.  The school asked parents to volunteer to come and shovel snow out of the staff car park.  Now, you must understand that at this point, parents had had over excited children at home over Christmas, and they had only managed either 1 or 2 days back before snow closed the school, so….

...our children *will* come to school tomorrow!!!!

…our children *will* come to school tomorrow!!!!

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The Tragedy of Amelia Saunders

Amelia Saunders is a little 4 year old girl from my home town of Reading, Berks, UK.  She was disagnosed in February last year with an inoperable brain tumour.

I was heartbroken this morning to read a statement from Amelia’s mother (in response to an inaccuracy in a Daily Mail article).  She says:

“I want people to understand what my life is like right now – I have a child who wants me by her side 24/7, she can barely communicate with me and gets very frustrated all the time. She will not let anyone else feed her, dress her, give her medicines. I have to nurse her until her death, we have no idea how long that will be, in the mean time I just have to keep her as happy and comfortable as possible – read her stories, show her photos and talk to her about happier times.” (italics added by me).

When I first heard of Amelia’s plight, I was all ready to donate as her parents wanted to take her to the Burzynski Clinic in Texas, for which they required £200,000.  I feel relieved that before I donated, I was pointed in the direction of some facts about Burzynski.

  • His “treatment” is, in fact, a clinical trial…which has currently been going on for around 30 years – to me, “treatment” should mean just that – a treatment – not a trial.
  • Participants in the trial are required to pay.  A lot.  Just to take part.I’m sure I was PAID to take part in the trials that I have done…

Don’t get me wrong, I have SO much sympathy for this family.  As a mother myself, I can empathise with the desperation that they must have felt when told that their dear, sweet, beloved daughter had no options.  But I feel angry for the people that Burzynski is tempting with his “miracle” treatment, which seems to not really work anyway.  Relaible, peer reviewed publications are few and far between (ie non-existant).  The “trial” seems not to be progressing at any great rate…

When Burzynski’s potential “quack” status was first pointed out to me, I watched the family’s FaceBook page with my heart in my mouth.  I hoped beyond hope that those attempting to expose Burzynski were wrong.  And in November, the family reported that the tumour appeared to be changing (for the better).

But tragically, now little sweet Amelia is in hospital and she is dying.

So I am adding another blog to the many blogs and articles already out there (a couple of links below) to beg families in these situations to reconsider lining Burzynski’s bulging pockets.

And I wish Amelia and her family peace and love in the time that they have left together.

Burzynski Institute: Patient Exploitation in the Name of Research

More patients whose deaths Burzynski has presided over…

More sad news about a Burzynski patient

Yet another patient wasting money on Stanislaw Burzynski’s antineoplastons while Burzynski apparently slithers away from justice yet again

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Flooding in Purley-on-Thames

Purley playing fields

Purley playing fields

My mum sent me these pictures of the floods near her home in Purley-on-Thames.  We take the kids to play at this park often in the summer…

Mapledurham Lock (in the distance!)

Mapledurham Lock (in the distance!)

In the summer (and sometimes in other seasons!), we walk across the field under this water to the lock that is just visible in the distance.  This is in large part due to the irrisitable draw of the ice cream shop on the lock!!!  There is also a geocache near the lock…Thames Path – Mapledurham Lock, although you’d have to swim there at the moment!

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Top Unusual Names 2012

Ohhhhhh dear!  I came across this article on the Yahoo! news website…

http://uk.lifestyle.yahoo.com/top-10-unusual-baby-names-of-2012-145934202.html

1.    Tinkerbell – Girl
2.    Nemo – Boy
3.    Sailor – Boy
4.    Buzz-Bee – Boy
5.    Zed – Boy
6.    Blade – Boy
7.    Zico – Boy
8.    Diesel – Boy
9.    Buttercup- Girl
10.  Bliss – Girl

There are no statistics as to how many children have been given these names…but I had a guinea pig called Tinkerbell once…and a bunny called Buttercup!

And Buzz-Bee?  Really?  Does this pass the “park” test (how does it sound when you call your child from the other side of the park)?  Or maybe the “register” test – how likely is you child’s teacher to gaffaw when they call their name from the register.  Or the “teenager” test – is your child going to ask to be called by a different name as a teenager and change their name by deed poll on their 16th birthday?

I thank goodness that my parents were sensible when they named me!!!

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